When six-year-old Van Bernard was just 10 months old, he was diagnosed with a rare degenerative neuromuscular disorder called Spinal Muscular Atrophy Type 2.
He started using a power wheelchair when he was 18 months old. He spent significant time in the hospital due to double lung pneumonia.
At the Walk for Muscular Dystrophy in Halifax last summer, Van's music therapy teacher, Tom Curry, helped him perform his favourite song, the Lumineers' "Ho Hey."
"Takes a lot of lung muscles to sing like this!!" write Van's parents, Colin and Julie Bernard.
Van's family is hoping the video of their son will inspire good Samaritans across the country to help them pay for a wheelchair van, as transferring their growing boy from his power chair to a car seat is no longer safe.
"We are blessed that he continues to thrive and grow into an intelligent, funny and always smiling little boy. But as he gets bigger so do our challenges," write Van's parents.
Check out their fundraising page here.