Robyn Levy never anticipated she'd be diagnosed with Parkinson's disease in her 40s.
But at just 43 years old, she started to exhibit symptoms of young onset Parkinson's, including loss of balance and difficulty moving her arm. Typically, Parkinson's disease affects people after the age of 60.
"The shock was so profound," she told host Gloria Macarenko on CBC'sBC Almanac.
April is Parkinson's awareness month, and while Levy admits that living with a neurodegenerative disease is challenging at times, she says she's found a way to cope. In the ten years that she's battled Parkinson's, she's written a published book, taken up painting as a hobby, and become an avid swimmer.
In fact, living an active lifestyle like Levy's can actually reduce the symptoms of the disease.
Parkinson's is a neurodegenerative disease that takes place when the body's cells producing dopamine — a neurotransmitter that affects emotions and movements — die. Symptoms include tremors, slowed movement and speech changes.
"Parkinson's is different for everybody — no journey is the same," she said. "It affects so many things — everything from your physical body to your emotional state, stress and diet and connection with your community."
There's over 100,000 Canadians living with the incurable disease. One of them is Levy's father, who was diagnosed shortly before her.
"We have an understanding and a compassion and a level of understanding that you can't really get unless you are familiar with the disease."
Levy's battle with the disease is chronicled in her memoir Most of Me: Surviving My Medical Meltdown. The book shares her own unique glimpse of the disease that affects 10 million people worldwide, highlighting how she's managed to live with it alongside a subsequent diagnosis of breast cancer.
"What I'm trying to do in my life now is not define myself or let Parkinson's define who I am," she said. "I'm just choosing to focus on other activities and family and friends ... and learning how to impact and possibly change and hoping to reverse some of the symptoms — and that's through [meditation] and reading and exercise and painting."
Maintaining an active lifestyle is a form of treatment that many doctors encourage.
"We do know that exercise is very good for the disease, and probably slows the progress," said Dr. Martin McKeown, director of the Pacific Parkinson's Research Centre at UBC.
McKeown cautions that every case of Parkinson's is different, and that there's no consensus on what forms of exercise are most beneficial. He says exercises like Tai Chi can be good for sustaining balance, but more aerobic activity has the potential to promote brain repair.
He says some of the work at the centre focuses on determining which exercises would prove most effective.
Some research has already shown that activities like dancing and boxing are beneficial.
"The idea of rapidly punching a bag seems to be a particular useful exercise for people living with Parkinson's."
With files from CBC's BC Almanac